Upcoming Events

Currently we have no planned events. They will be listed here when we do.

Previous Events

UK NCBRS Meeting 2018

This event was held in June of 2018 at the Premier Inn, Manchester.

This was a huge success and we thank the doctors and families involved to make it the success it was.

Pictures from the event can be found here ....

editors

UK 2018 Picture Gallery

Toronto NCBRS Meeting 2015

The event was a huge success. Many thanks to the doctors and all the families that attended.

The feedback from all the families was very positive and all said, that not only did they receive lots of information, but also how wonderful it was to be able to connect with each other.

Pictures from the event can be found here ....

editors

Toronto 2015 Picture Gallery

Videos from the event can be found here ....

editors

Toronto 2015 Videos

The following are the Powerpoint files used during the doctors presentations. Hopefully they will give an insight (memory jogger for those who attended) of what occured during the meeting.

NCBRS parent meeting 2015

Nicolaides-Baraitser Syndrome (NCBRS)

Epilepsy